Our Blog
Sex with ALS
“I slide with the silky sheets, sheets that in another room, indeed another life, would shout, ‘Hey, this bed is for sex!’”
Hanging on a Moment
“I often think about the picture that numbers weave about infinity, particularly when I am pondering my own death, and it's something that I want to share with my daughter when she is old enough.”
Into the Total Perspective Vortex
“In the face of being told I was actively dying, for the first time in years, I felt the powerful urge to LIVE.”
Pointless Perfectionism
“I didn't realize how self-critical I was of my body until I had ALS”
Not as Simple as “Just Do It”
“Life Tip #3: Trust yourself and replace the phrase ‘I can’t’ with ‘I’ll try my best.’”
HAS Retreat 2024 Recap
"More than most, we understand the urgency to soak up every moment."
My Father is a Hero
“A retired Trenton cop and ceaseless prayer warrior, my dad was born to be a protector.”
Mr. Everything
“In the constant commotion of our household it can be… a lot. The one who keeps it all together is dad.”